Location: Eastern Europe
Birth Year: 2012
Jonathan was born in April 2012. He is a cheerful and inquisitive little boy with Spinal Muscular Atrophy Type 2 (confirmed via DNA analysis), hypotonia, and delayed physical development. He also has a moderate form of Hemophilia A, treated as necessary with Factor VIII. Jonathan loves to explore and interact with his surroundings. He sits unsupported and moves around the floor efficiently from a sitting position. He is unable to stand at this time. He grabs and holds objects and enjoys toys that he can manipulate or construct. He has strong receptive language skills and easily follows instructions. While Jonathan speaks primarily in single words and simple sentences with good pronunciation, he is also able to initiate simple conversations and ask questions. He is appropriately shy with strangers but actively seeks contact with familiar adults. Jonathan enjoys participating in group activities, singing familiar children’s songs, watching cartoons, and listening to stories. Jonathan is an observant and caring little boy who perceives when other children are frustrated or anxious and does his best to help them. In fact, he often assists a friend with visual impairment by handing him toys and removing objects from his way. Jonathan sleeps well, has a good appetite and attempts to feed himself. He is not yet toilet trained. Our in-country representative feels that with increased individualized attention, social stimulation and educational possibilities, Jonathan will achieve his full potential. His greatest need is to have a family who loves him and with whom he can share his love and affection. Weight at Birth: 3.200 kg Weight June 2016: 11.700 kg Height at Birth: 49 cm Height June 2016: 91.5 cm Head circumference at Birth: n/a Head circumference June 2016: 46 cm Update August 2016: Our in-country representatives initiated another visit with Jonathan to clarify his recent diagnosis of Hemophilia A. The condition presented with a severe nose bleed requiring a hospital admission, at which time testing confirmed Hemophilia A. Medication is only required during a bleeding episode. The diagnosis came to light later than usual as a result of Jonathan’s decreased mobility. His therapists are extra cautious when working with him; consequently, his sessions are less intensive and his overall progress is slower. Jonathan desperately needs the expertise of specialists abroad who can effectively manage both of his diagnoses to ensure he receives the best therapy and treatment possible. Usually a joyful boy, Jonathan has been feeling a bit sad lately since his best friend was recently transferred to a different group and the other children he is with are all younger than he is. This special little boy truly impressed our in-country representative with his compassion, his emotional stability, and his patience. Jonathan so deserves the devotion of a family of his own. Contact the adoption agency to get more information of this child!