It’s hard to know what our donor conceived kids will want or need when they haven’t even been conceived yet, but we have a clue by listening to donor conceived adults.

All decisions in parenting are supposed to be made with the children in mind. Keeping the child’s interest in the front of our mind is easier once the child is here. We have a real live kid, with real live needs to see. Far harder is anticipating the needs of a child that is only in our dreams, but that is often the lot of all parents– especially parents who have to really work to get their children.

Parents using third party reproduction (egg, sperm, and embryo donation and surrogacy) are in a particularly hard spot. Before this precious child is even conceived they must make many decisions that will or may profoundly affect their child. In addition to deciding whether to use a donor and which donor to use, they also have to decide whether to choose a donor that will share identifying information.

That’s a lot to think about when you have no idea who this child will be or what he will want. Heck, at this stage, you’re not even sure that you’ll ever be a parent.

Should You Get Identifying Info on Your Donor

Unfortunately, the decision on whether to choose a donor that will share identifying information and/or agree to contact once the child is of age must be made at this very beginning stage. Once you select an anonymous donor with no identifying information, neither you nor your child can’t go back and demand this information.

Whats Best for Children Conceived via Egg, Sperm, or Embryo Donation?

If you’ve been reading this blog for long, you know that I am the last person to make broad generalizations about groups of people. To make generalizations, we need long term, well designed research on a large number of donor conceived people – the larger the better. There has not been a lot of this type of research focused on the benefits of identifying genetic information, and most of the research that has been done has been on people conceived via sperm donation.

We do have this type of research on people who were adopted that indicates that some degree of openness and knowing their genetic roots is beneficial to children. While I think this research has relevance and is worth considering, there are significant differences between people conceived via egg donation, sperm donation, or embryo donation and people who were adopted.

I suspect, given human nature, that once the research is finally done, we’ll see a broad spectrum of needs for identifying information on donors. For some donor conceived people, this information will be crucial to their well being – they will feel incomplete without it. Others will likely not care at all. The majority will probably fall somewhere in between.

What will your future child want?

Ive heard parents imply or say that their child will not want or need information on their donor because:

a)  They will be raised by both a mother and father, thus never experience a lack of a parent.

b) We will be such great parents that our child will have no need to search.

c) We won’t tell them, so they will never know they were conceived with donor egg or sperm.

Ahhh, if only wishing could make it so.  The truth is that you don’t know in advance what your child will need or want, and it has little do with good parenting, and given the developments in genetic testing, it will have little to do with what information the parents share or withhold.

What Donor Conceived People Say

In doing research for an upcoming Creating a Family show with a panel of donor conceived people, I ran across this blog on Donor Sibling Registry with quotes from people joining their registry just in the month of May. While it’s fair to assume that people joining the Donor Sibling Registry are going to fall somewhere in the “I want to know info on my donor” camp, their thoughts are well worth considering when deciding on how much information to get on the egg donor, sperm donor, or embryo donor since you don`t know where your child will fall. Note also the frequent mention of wanting info on siblings, which I hear a lot. With their permission we share some here.

  • “I didn’t really mind not knowing who my donor was until I turned 18. Now it’s all I can think about. I’m just trying to reach out and see if I can find any siblings. I would like to know if I have any siblings and would like to meet them and to hopefully meet the man that help give me life.”
  • “I was conceived by a donor egg. My mom says she does not remember any of the basic information about the egg donor (ethnicity, medical history, etc). I have called the clinic where I was conceived multiple times, left messages and never gotten a response back. The only information I have is the serial number of the petri dish I was made in, because the clinic gave my mom the petri dish as a souvenir. I am ****. I got that number tattooed on  my back, I guess it was my way of trying to re-establish control and ownership of my own body after I had been told I had no legal rights (seeing as I was the product, and not one of the people involved) to my own genetic history and information. I love my mom and her family, but it has always been extremely obvious that I do not share genetic material with them; aside from physical appearance, we have absolutely nothing in common in terms of shared interests, aptitudes, dislikes, taste or personal traits.”
  • “Hello, I found out that my conception was the result of an artificial insemination when I was 13 years old. Although I’m very fortunate to have a loving father who has been an important and active part of my life since birth, not knowing anything about the other half of my genetic code has always been in the back of my mind. Now, at 32 years old, I have decided to take action and reach out to see who else shares my genes and possibly solve some questions that have been long unanswered.”
  • “I recently learned as a result of a population finder DNA test that the father who raised me is not my biological father. I received confirmation that my mother did, in fact, use a sperm bank in order to conceive me. Unfortunately, my mother is unwilling to reveal any information about where the treatment took place.”
  • “Its scary when I think of trying to find out who my father is. . .what if he wants nothing to do with me? The idea of finding my siblings however is more comforting though. We all just want the same thing, to find out where the other parts of us are. I want to be able to talk to someone who has had similar experiences as me. My sister is also a child of a sperm donator, and although we have the same mother, we have two separate fathers. We’ve grown up together, I love her more than anything, and I don’t consider her a “half” sister, but I would love to meet someone who shares the same DNA as me… the genes I received from my father. “
  • “Hello, I found out that my conception was the result of an artificial insemination when I was 13 years old. Although I’m very fortunate to have a loving father who has been an important and active part of my life since birth, not knowing anything about the other half of my genetic code has always been in the back of my mind. Now, at 32 years old, I have decided to take action and reach out to see who else shares my genes and possibly solve some questions that have been long unanswered.”

What do you think? Is it fair to donor conceived children to choose an anonymous donor? Is it fair to parents to put their future child’s potential desires over their own needs?

P.S. In July we will have a panel of four donor conceived people on the Creating a Family show to talk about this and the perspective of adults who were conceived by donor. Sign up for our twice weekly newsletter to get more details and to submit a question for the panel.

 

Image credit: HoboMama